When you reach the age of 65 you are no longer qualified for SS disability benefits... you just get your SS...
John, go in and talk to the patient advocate and see if they can help you...
TJ, I'm no expert on this, but I thought someone (anyone?) who never actually qualified for Social Security
retirement benefits (based on enough employment quarters, paying into the system), could still get Social Security
disability benefits, even without ever making the retirement benefit qualifications, assuming they can meet the separate
disability benefit requirements (basically, permanent and total disability)(at any age).
I agree with talking to a patient advocate, that was what I was trying to say in my post above about double checking SS, medicare, medicaid, and your own health insurance.
I see these SS/Medicare supplemental coverage adds all the time. If Medicare A (and B) don't get home care assistance, maybe one of these Medicare supplement programs might cover it. That assumes of course that the premiums are less that it would cost to just hire someone to help you out of your own pocket.
Another possible idea here would be to research any local universities or nursing or other medical educational programs who may place students in private homes as part of a student clinical program (for free).
In law school, I paid tuition to take a clinical program representing indigent misdemeanors in Detroit District Courts (under the supervision of our attorney instructor). (Being locked inside the cage with the men was no big deal, but being locked in with the women scared the hell out of me).