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Chrisj CMA
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« on: November 29, 2018, 12:57:04 PM » |
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Update....
Had the next blood test today. Platelets went down a bit. They were 22K, Now they are 16K. Normal (im not normal) is 180K or a bit less plus or minus in that area.
So my Dr did a bone marrow biopsy. Think about that., A sample of bone marrow. This means two needles, one littlish and one a bit larger at the location where you get shots in the butt. The needle has to get into the pelvic bone deep enough to extract some marrow. Im just back from the Dr office and the Lidocaine is starting to wear off. Thats the PITA I mentioned. We'll know more in two weeks why the platelets are so low and what (if anything) to do about it.
Good news is, Im riding, working and feeling great with no bad signs or symptoms which perplexes my Dr. She keeps saying Im not normal. LOL
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« Last Edit: November 29, 2018, 01:04:21 PM by Chrisj CMA »
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Daniel Meyer
Member
Posts: 5493
Author. Adventurer. Electrician.
The State of confusion.
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« Reply #1 on: November 29, 2018, 01:20:05 PM » |
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Yeeks...sounds serious (besides the serious PITA)...
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CUAgain, Daniel Meyer  |
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hubcapsc
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Posts: 16799
upstate
South Carolina
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« Reply #2 on: November 29, 2018, 01:25:07 PM » |
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Im riding, working and feeling great  -Mike
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Pete
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« Reply #3 on: November 29, 2018, 01:28:53 PM » |
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Best wishes that all comes out well.
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The emperor has no clothes
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« Reply #4 on: November 29, 2018, 02:15:18 PM » |
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A needle that goes all the way into your pelvic bone ?  sounds medieval. But you ain't no ordinary dude by any stretch. Take care Jeff |
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Chrisj CMA
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« Reply #5 on: November 29, 2018, 02:43:41 PM » |
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A needle that goes all the way into your pelvic bone ? sounds medieval. But you ain't no ordinary dude by any stretch. Take care Jeff Thanks Man! Being normal is overrated!! All my training in pain has paid off. A little bone marrow biopsy is nuthin compared to what I have endured the last few years, granted some has been my own fault, that dont make it hurt less however. LOL |
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signart
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« Reply #6 on: November 29, 2018, 03:19:07 PM » |
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Praying for you. Keep riding and keep living!
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Chrisj CMA
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« Reply #7 on: November 29, 2018, 04:58:27 PM » |
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Praying for you. Keep riding and keep living!
Yes, you can only live today. I'm alive today  Thanks! |
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Ken aka Oil Burner
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« Reply #8 on: November 29, 2018, 06:35:54 PM » |
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Damn. Made me cringe thinking about a bone marrow biopsy in your pelvis. PITA might be understating a touch. I've had two needle biopsies to date, but neither in bone. Keep fighting the fight! I'll be praying for good health and good news for you.
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Patrick
Member
Posts: 15433
VRCC 4474
Largo Florida
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« Reply #9 on: November 30, 2018, 05:14:54 AM » |
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Hang in there. I like your attitude. Some of these procedures are barbaric.
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DDT (12)
Member
Posts: 4120
Sometimes ya just gotta go...
Winter Springs, FL - Occasionally...
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« Reply #10 on: November 30, 2018, 05:41:16 AM » |
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Jeff,
Youdaman!!! 'Normal' you may not be, but strong and resolute you most definitely are! I'm proud of you for fighting the good fight, but more, for keeping your wits about you and your spirits high! I'm sure it helps the 'Queen' to cope, as well. Anyway, we're all thinking about you and pulling hard for you!!!
DDT
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Don't just dream it... LIVE IT!
See ya down the road...
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henry 008
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Posts: 1538
BRP
willard, oh
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« Reply #11 on: November 30, 2018, 05:59:53 AM » |
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Im riding, working and feeling great -Mike +1 |
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Safe Winds... Brother  |
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MAD6Gun
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« Reply #12 on: November 30, 2018, 06:15:28 AM » |
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That sucks Jeff. My platelets are around 77k. Not as low as yours but my doc says 150k or so is normal. He wants to keep mine above 100k. I have b to have a scan done first of the year. If the scan comes back OK I will likely have to do the same as you. A bone biopsy. Not looking forward to it. This getting old chit is getting old to say the least.....
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« Last Edit: November 30, 2018, 06:38:53 AM by MAD6Gun »
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old2soon
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« Reply #13 on: November 30, 2018, 07:18:52 AM » |
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That sucks Jeff. My platelets are around 77k. Not as low as yours but my doc says 150k or so is normal. He wants to keep mine above 100k. I have b to have a scan done first of the year. If the scan comes back OK I will likely have to do the same as you. A bone biopsy. Not looking forward to it. This getting old chit is getting old to say the least.....
What yer goin thru sure as hell beats the alternative. Both y'all git better and RIDE! |
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Today is the tommorow you worried about yesterday. If at first you don't succeed screw it-save it for nite check. 1964 1968 U S Navy. Two cruises off Nam.
VRCCDS0240 2012 GL1800 Gold Wing Motor Trike conversion
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Chrisj CMA
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« Reply #14 on: November 30, 2018, 11:28:27 AM » |
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That sucks Jeff. My platelets are around 77k. Not as low as yours but my doc says 150k or so is normal. He wants to keep mine above 100k. I have b to have a scan done first of the year. If the scan comes back OK I will likely have to do the same as you. A bone biopsy. Not looking forward to it. This getting old chit is getting old to say the least.....
Well, I dont know your details, and I dont want to say anything about your Dr. However, everything I have heard and been told is that above 50 is the safe threshold. Unless you have symptoms like petechiae or blood blisters in the mouth, and easy bruising. I had all that when I was down to 5 and 8K but near 20K I have no symptoms. My dr would be happy long term if I was between 20 and 50, closer to 50 the better. Mark, look up the benifits to platelet production of Papaya Leaf Extract. I justs ordered some and gonna give it a try! I figure its natural, I love papaya so what can it hurt, reviews says it has produced increased platelets. This what I ordered today. Scroll down and read the reviews https://www.amazon.com/Papaya-Extract-Natural-Ounces-Dropper-Top/dp/B00AROFM5C/ref=sr_1_1_a_it?ie=UTF8&qid=1543605908&sr=8-1-spons&keywords=papaya+leaf+extract+for+platelets&psc=1 |
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« Last Edit: November 30, 2018, 11:39:22 AM by Chrisj CMA »
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flsix
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« Reply #15 on: November 30, 2018, 02:56:55 PM » |
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Jeff stick with it. Glad you are trying the alternatives too.
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2013 F6B
ESCHEW OBFUSCATION
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Pappy!
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« Reply #16 on: December 01, 2018, 08:19:58 AM » |
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Fingers crossed and a little prayer that things turn out better than expected! You're a good man.
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sixlow
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« Reply #17 on: December 01, 2018, 09:05:44 AM » |
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We are keeping you in our prayers Jeff.
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shortleg
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« Reply #18 on: December 02, 2018, 09:21:40 AM » |
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Dad used to cal it living like a dog, meaning that you live in the here and now.
Letting the past and future take care of themselves.
I know with prostrate cancer and the chromes thing I went and am going through
you really learn how much each day is worth and truly a gift from God.
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Bigwolf
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« Reply #19 on: December 02, 2018, 10:02:08 AM » |
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Jeff,
We might have seen each other at an Inzane but I don’t remember ever talking with you. However, reading your posts tells me a lot about your strength of character and general outlook on life. Both are good.
Anyway, just wanted to say I am wishing good things for you. Many prayers have included you and I will continue to do so.
Thanks for sharing your journey with all of us. You never know who might benefit from the knowledge of your struggle. So many of us, men more than women, keep silent about personal struggles and we are all worse off for that practice. Knowledge is power.
Wishing you the very best. Would love to shake your hand and share a cold beverage with you some day.
Jerry
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Chrisj CMA
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« Reply #20 on: December 02, 2018, 12:15:14 PM » |
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Thanks guys, I guess many of us has stuff. I hope all this stuff works out and we get to see each other a few more times. Keep the shiny side up as we say!
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Chrisj CMA
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« Reply #21 on: December 23, 2018, 06:24:49 AM » |
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Got an early Christmas present. Results back from the biopsy. No signs of leukemia at all in the bone marrow. Platelets are still low but we're working on that. The marrow biopsy showed that I am making a normal amount, they are being stolen. This is very good news. It rules out any discussion of a bone marrow transplant. All I need is a few more platelets to stick around and I ll be good for years and years. So the chemo worked, I've gained back the weight I lost and I need a haircut again. Thank you Lord. You all have a great Christmas |
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RDKLL
Member
Posts: 1222
VRCC #1231 VRCCDS #271
Mesa, AZ
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« Reply #22 on: December 23, 2018, 06:27:45 AM » |
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Good to hear Chris! Now get out and ride!
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bassman
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« Reply #23 on: December 23, 2018, 07:11:12 AM » |
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Good news ! |
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Oss
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Posts: 12761
The lower Hudson Valley
Ossining NY Chapter Rep VRCCDS0141
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« Reply #24 on: December 23, 2018, 07:37:03 AM » |
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we will keep you in our prayers, as with all the other survivors and those waging the battle
Great News and Merry Christmas to you and the Queen
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If you don't know where your going any road will take you there
George Harrison
When you come to the fork in the road, take it
Yogi Berra (Don't send it to me C.O.D.)
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pais
Member
Posts: 723
One more turn should do it!
Kent, Ohio
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« Reply #25 on: December 23, 2018, 07:47:49 AM » |
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Got an early Christmas present. Results back from the biopsy. No signs of leukemia at all in the bone marrow. Platelets are still low but we're working on that. The marrow biopsy showed that I am making a normal amount, they are being stolen. This is very good news. It rules out any discussion of a bone marrow transplant. All I need is a few more platelets to stick around and I ll be good for years and years. So the chemo worked, I've gained back the weight I lost and I need a haircut again. Thank you Lord. You all have a great Christmas That is great news and a wonderful early Christmas present! Merry Christmas and Happy New Year to you and yours! I enjoyed the conversation, burger and beer @ Shula's during Inzane with you and Farside this past Summer. Looking forward to doing it again. |
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Better to have it and not need it, than to need it and not have it!  |
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2KVISRiderDan
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« Reply #26 on: December 23, 2018, 08:06:29 AM » |
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That is great news Jeff! Great medicine, great attitude, and a strong faith are serving you well. Come on, platelets, get with the plan! Wishing you continued improvement, thanks for sharing your good news.
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2005 Yamaha Midnight Star SOLD
1997 Yamaha Royal Star Std SOLD
2000 Blue & Grey Interstate
2001 Black & Champagne Solo Interstate
1998 Blue & Cream Valkyrie Standard Roadsmith Trike
1997 Black Standard
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MAD6Gun
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« Reply #27 on: December 23, 2018, 09:42:05 AM » |
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Great news Jeff. Merry Christmas..........
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Ken aka Oil Burner
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« Reply #29 on: December 23, 2018, 01:06:56 PM » |
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Very glad to hear the good news!
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Hook#3287
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« Reply #30 on: December 23, 2018, 01:21:08 PM » |
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Great Christmas gift |
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signart
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« Reply #31 on: December 23, 2018, 02:07:39 PM » |
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This is very good to read. Makes for a merrier Christmas for all of us.
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98valk
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« Reply #32 on: December 23, 2018, 02:45:25 PM » |
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praying for you Chris. some latest research to look into "deep blood fungus" https://healthchoicesnow.com/treatments/deep-blood-fungus/John Parks Trowbridge M.D., FACAM https://healthchoicesnow.com/about/Since the fall of 2015, we’ve been able to positively identify specific fungi found in the blood of patients suffering with a wide range of “inexplicable” diseases, such as: Various cancers, blood cancers, severe skin conditions, sudden kidney failure, sudden worsening of diabetes, MS (multiple sclerosis), ALS (Lou Gehrig’s disease), RA (rheumatoid arthritis), SLE (lupus), vague immune defense system disorders, and others. The laboratory performing our tests has confirmed fungus evidence in the plaque blocking heart arteries (our leading cause of death) and in other body organs. |
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1998 Std/Tourer, 2007 DR200SE, 1981 CB900C 10speed
1973 Duster 340 4-speed rare A/C, 2001 F250 4x4 7.3L, 6sp
"Our Constitution was made only for a Moral and Religious people. It is wholly inadequate to the goverment of any other."
John Adams 10/11/1798
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Chrisj CMA
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« Reply #33 on: January 22, 2019, 09:56:45 AM » |
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Been awhile. So the good news is That I am still in remission and the bone marrow biopsy did indicate that I am producing platelets at a normal level. The bad news is they are being targeted we think by the spleen still. My dr is sending me to MD Anderson in Houston for evaluation for a splenectomy. It’s just a tricky thing to do a surgery like that with platelets at 18. Will come back and tell how it goes.
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The emperor has no clothes
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« Reply #34 on: January 22, 2019, 10:00:54 AM » |
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Been awhile. So the good news is That I am still in remission and the bone marrow biopsy did indicate that I am producing platelets at a normal level. The bad news is they are being targeted we think by the spleen still. My dr is sending me to MD Anderson in Houston for evaluation for a splenectomy. It’s just a tricky thing to do a surgery like that with platelets at 18. Will come back and tell how it goes.
Thanks for the update. Best wishes on the evaluation. |
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Patrick
Member
Posts: 15433
VRCC 4474
Largo Florida
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« Reply #35 on: January 22, 2019, 10:04:41 AM » |
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Hope everything turns out OK.
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flsix
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« Reply #36 on: January 22, 2019, 03:06:27 PM » |
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Keep fighting Jeff. We'll keep you in our prayers.
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2013 F6B
ESCHEW OBFUSCATION
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f6john
Member
Posts: 9721
Christ first and always
Richmond, Kentucky
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« Reply #37 on: January 22, 2019, 03:11:15 PM » |
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I’ve heard good things about MD Anderson. Got to be a good thing that the marrow is good!
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Pappy!
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« Reply #38 on: January 23, 2019, 05:21:56 PM » |
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Fingers crossed and praying for you!
Hey, it's not a bad thing to be "abbynormal" !
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