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Author Topic: no antidote {ms drugs}  (Read 466 times)
DirtyDan
Member
*****
Posts: 3450


Kingman Arizona, from NJ


« on: November 29, 2015, 11:22:29 AM »


my MS is hitting so much right now I couldn't ride IF my arm was good

Do you have the relapsing/remitting kind? The various drugs work differently
on different people, but "Copaxone" has done a lot of good for someone
I know...

-Mike

this was from another thread I did not want to hijack it

I was diagnosed in 2010 with ms. im going to assume it was the relapsing remitting kind till now

my symptoms are acting up pretty good{bad} past 2 weeks that's more than usual but past 2 days have been ok. so It is getting worse but who knows how its going to go

my doc {neurologist} said avonex or Copaxone both of witch scare the living %*$# out of me. the other treatments are just as bad {in my opinion}. realy read the articles its not fun

too many unknowns too ineffective too many side effects too expensive

so im sticking with steroids for short term fixes and hoping for the best

dan
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Do it while you can. I did.... it my way
Challenger
Member
*****
Posts: 1321


« Reply #1 on: November 29, 2015, 11:32:44 AM »

Here's hoping what ever you try, works for you. Hope to share some wind and good food with you again sometime.   
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John Schmidt
Member
*****
Posts: 15325


a/k/a Stuffy. '99 I/S Valk Roadsmith Trike

De Pere, WI (Green Bay)


« Reply #2 on: November 29, 2015, 11:42:55 AM »

A few years before I retired, we had a lovely young woman with MS in our office that was also a supervisor. You could tell when she was having a bad day just by the way she walked. In talking to her one day, she admitted she was only staying long enough to be vested in what small retirement she'd get for ten years. Gutsy gal, and she did make it to ten years. What really got us all was the very next year, our legislature (was a state job) changed it to six years instead of ten in order to be vested. Often wondered if she's still on her feet, has to be close to 25 yrs. ago now and she was in her mid 40's at the time.
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hubcapsc
Member
*****
Posts: 16802


upstate

South Carolina


« Reply #3 on: November 29, 2015, 02:19:29 PM »


Copaxone is expensive on paper,  but can be inexpensive
in actual use...

It is an every-other-day shot - used to be every day - so
that's better than it was...

It might have some bad side effects on some people, I don't
know, but the only side effect I know of on the person I know
that uses it is the mechanical side effects of shots over and over.

It (or something) has really helped...

-Mike
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