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MAD6Gun
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« on: February 05, 2016, 02:33:22 AM » |
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Last Friday I went into the hospital for a kidney biopsy. It went well,doc got 6 samples. Spent the next 6 hours flat on my back to let the kidney heal. That sucked. My wife Twila had to feed me not to mention help me do something else I won't go into here. LOL.
Fast forward to Wed this week. Went to my nephrolagist. He told me I have IgA also known as Berger's desease. There is no cure. The damage is done. The treatment at this time is to use prednisone for 6 months. My first treatment was done yesterday by IV. Since then I have had this nasty taste,yuck. I hope this goes away. From now on I am taking pills every other day for the next six months. Also including two more IV infusions in that time frame. I already have cut back on my sodium intake now with the use of prednisone possibly causing diabetes I have to watch my sugar intake. No more mountain dew or southern sweet tea.
So that is my diagnosis in a nut shell. If this treatment doesn't work then there is a possibility I may have to do kidney diallisis then transplant. That is worse case scenario. My doc is going to his best to keep that from happening. I just have to do my part. This treatment shouldn't effect my life to much. Still planing on inzane. I want to thank everyone for their well wishes.
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Cliff
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« Reply #1 on: February 05, 2016, 03:05:51 AM » |
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That's news that I'm sure wasn't easy to receive.... praying that your treatments are successful!
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VRCC # 29680
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Xtracho
Member
Posts: 1303
The Bosses
Florida's Emerald Coast
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« Reply #2 on: February 05, 2016, 03:15:15 AM » |
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Prayers that the intervention is successful.
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Mark
"To live you must be willing to die" - Amir Vahedi
My father gets smarter each day he is gone.
In the stable:
'84 GW Aspencade
'47 Indian Chief
'98 Valkyrie
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Chrisj CMA
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« Reply #3 on: February 05, 2016, 03:18:47 AM » |
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That's a tough answer for sure Mark. You sound like spirits are high.......Keep them that way. My prayers are that it's not worst case. Hang in there
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Dave Ritsema
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« Reply #4 on: February 05, 2016, 03:37:03 AM » |
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Your a good man Mark, I know you will get thru it. Prayers for a full recovery coming your way from a fellow Hoosier. Looking forward to seeing you at InZane!
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VRCC 2879
Lake City Honda Warsaw IN
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Karen
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« Reply #5 on: February 05, 2016, 03:37:39 AM » |
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Sorry to read this, Mark, but it looks like the diagnosis and treatment is a good thing. The future is unknown, and I pray you will have a long, painless, and uncomplicated one. You'll have to tell us more about Twila's new job someday...
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DirtyDan
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« Reply #6 on: February 05, 2016, 03:45:51 AM » |
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im glad you have hope for treatment
I don't
be strong
dan
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Do it while you can. I did.... it my way
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Jersey mike
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« Reply #7 on: February 05, 2016, 03:55:51 AM » |
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sorry to hear about this. stay strong, keep your chin up. try doing what the doctors suggest. find out everything you can about this and if in doubt find another doctor to consult.
I wish you the best.
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Oss
Member
Posts: 12765
The lower Hudson Valley
Ossining NY Chapter Rep VRCCDS0141
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« Reply #8 on: February 05, 2016, 04:14:15 AM » |
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Glad you got those tests done and started your first treatment
Stay away from the sugar is smart, dont need more troubles
The docs agree Prednisone is the cause of most of my vision
limitations now, pay attention to any changes in vision Please. The stuff is nasty even if sometimes necessary.
Bonnie and I are pulling for you to come out of this ok
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If you don't know where your going any road will take you there
George Harrison
When you come to the fork in the road, take it
Yogi Berra (Don't send it to me C.O.D.)
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TJ
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« Reply #9 on: February 05, 2016, 04:51:50 AM » |
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Prayers coming your way from Fl....
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Skinhead
Member
Posts: 8743
J. A. B. O. A.
Troy, MI
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« Reply #10 on: February 05, 2016, 04:56:33 AM » |
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Best of luck, Mark. Just remember, it could be worse. Hang in there.
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 Troy, MI |
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old2soon
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« Reply #11 on: February 05, 2016, 05:44:14 AM » |
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Mark-you have the diagnosis you have your directions and meds from your Doctor. I too am PRAYING for the absolute BEST possible outcome. Repeating what others have said-LISTEN to your Doctor and your wonderful WIFE Twila.  Good luck my Friend and PRAYERS up from the Ozarks.  RIDE SAFE. |
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Today is the tommorow you worried about yesterday. If at first you don't succeed screw it-save it for nite check. 1964 1968 U S Navy. Two cruises off Nam.
VRCCDS0240 2012 GL1800 Gold Wing Motor Trike conversion
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Black Dog
Member
Posts: 2607
VRCC # 7111
Merton Wisconsin 53029
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« Reply #12 on: February 05, 2016, 07:38:37 AM » |
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Stay strong Mark... With Twila as yer nurse, and following Dr's orders, yer on a good path. Prayers and good thoughts from WI. See ya at InZane  Black Dog |
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Just when the highway straightened out for a mile And I was thinkin' I'd just cruise for a while A fork in the road brought a new episode Don't you know... Conform, go crazy, or ride a motorcycle...  |
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bassman
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« Reply #13 on: February 05, 2016, 08:52:18 AM » |
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Glad you took the initiative to get the tests done now rather than later. Wishing you strength and positive thoughts for a great outcome.
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Hooter
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« Reply #14 on: February 05, 2016, 08:56:20 AM » |
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Do what they say and you will be fine...WATER.......I have one of those diseases there is no cure for to it's call Sarcoidosis. They don't know exactly how you get it but hey figure I got into something fighting fire???? No cure but they say it can go into remission. I've had this crap for a long time and I don't see that happening. Mine forms calcium that is why they figure that I have had a recent bout of kidney stones. Very little if any salt, no ice cream  ???, and only as little calcium as is necessary. No Rolaids (calcium) an can only use Gaviscon if I have heartburn. Fatigue and constant pain are the biggest problems. It's great to get old. Take care of yourself! |
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You are never lost if you don't care where you are!
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JimC
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« Reply #15 on: February 05, 2016, 12:10:07 PM » |
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Mark,
Keep up the good attitude, I'm sure it will be hard at times, but you have a lot of people pulling for you!
Jim
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Jim Callaghan SE Wisconsin
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fudgie
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Posts: 10629
Better to be judged by 12, then carried by 6.
Huntington Indiana
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« Reply #16 on: February 05, 2016, 01:11:17 PM » |
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Thoughts are with you Mark and Twila.
The steroids in its self aint to bad. They do help. Ive been on them a lot for my asthma thru the yrs.
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 Now you're in the world of the wolves... And we welcome all you sheep... VRCC-#7196 VRCCDS-#0175 DTR PGR |
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big d
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« Reply #17 on: February 05, 2016, 01:34:21 PM » |
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Will keep you in my thoughts and prayers for all to go well and a successful treatment.
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PAVALKER
Member
Posts: 4435
Retired Navy 22YOS, 2014 Valkyrie , VRCC# 27213
Pittsburgh, Pa
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« Reply #18 on: February 05, 2016, 01:38:30 PM » |
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Will keep you in my thoughts and prayers for all to go well and a successful treatment.
I echo this..... |
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John  |
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shortleg
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« Reply #19 on: February 05, 2016, 03:46:04 PM » |
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The other draw back to prednisone is if taken to long it will
eat holes in your bones. Yes you heard me right.
My Gastro doctor has refused to put me on for just
that reason.
Just have to have bone density test done while on it.
Keep up the good fight. Also Rembert to smile and
kiss the ones you love like you mean it.
shortleg
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BF
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« Reply #20 on: February 05, 2016, 03:53:41 PM » |
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im glad you have hope for treatment
I don't
be strong
dan
I don't either. I'm stage IV Renal Cell Carcinoma. I am terminal. Lost my right kidney back in 2005....lost the left adrenal 2014 almost 9 years to the day they took the right kidney. Now I only have the left kidney. Also have severe anemia. The chemo seems to be killing all of my red blood cells. Have to get my blood checked once per week followed with a blood transfusion once ever two weeks. That takes about 4 to 5 hours for that little treat. Chemo is a drug called Afinitor. This is the second chemo that they've had me on. The first one was a drug called Votrient. The Votrient turned my hair and beard snow white.....the Afinitor has turned it almost black.  I've been dirty blond my entire adult life....never have had hair this dark before....it's pretty weird to look at myself in the mirror lately. Docs said that I might have anywhere from 3 to 5 or as much as 8 to 9 years left. I'm hoping for the later. I figure kidney failure will probably get me long before the cancer does anyway. None of that really matters to me btw. It is what it is. What really matters is that I've lost about 85 pounds along with a ton of muscle. Bike is way too heavy for me now and I can no longer ride. I miss riding. |
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I can't help about the shape I'm in I can't sing, I ain't pretty and my legs are thin But don't ask me what I think of you I might not give the answer that you want me to  |
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The emperor has no clothes
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« Reply #21 on: February 05, 2016, 05:33:09 PM » |
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im glad you have hope for treatment
I don't
be strong
dan
I don't either. I'm stage IV Renal Cell Carcinoma. I am terminal. Lost my right kidney back in 2005....lost the left adrenal 2014 almost 9 years to the day they took the right kidney. Now I only have the left kidney. Also have severe anemia. The chemo seems to be killing all of my red blood cells. Have to get my blood checked once per week followed with a blood transfusion once ever two weeks. That takes about 4 to 5 hours for that little treat. Chemo is a drug called Afinitor. This is the second chemo that they've had me on. The first one was a drug called Votrient. The Votrient turned my hair and beard snow white.....the Afinitor has turned it almost black. I've been dirty blond my entire adult life....never have had hair this dark before....it's pretty weird to look at myself in the mirror lately. Docs said that I might have anywhere from 3 to 5 or as much as 8 to 9 years left. I'm hoping for the later. I figure kidney failure will probably get me long before the cancer does anyway. None of that really matters to me btw. It is what it is. What really matters is that I've lost about 85 pounds along with a ton of muscle. Bike is way too heavy for me now and I can no longer ride. I miss riding. BF, I'm sure you do miss riding.  I'm sure all of us here would, we are with in spirit buddy  I hope you make it even past their guesses. Just lost a friend that I worked with for years. He wasn't even 50 yet. Hang in there. Hope you are able to get on here more. It doesn't matter that you aren't riding to us. |
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wiggydotcom
Member
Posts: 3387
Do Your Best and Miss the Rest!
Yorkville, Illinois
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« Reply #22 on: February 05, 2016, 05:52:26 PM » |
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Best wishes and prayers, Mark that this condition can be managed with meds and proper diet. As others have said, keep the faith.
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VRCC #10177 VRCCDS #239  |
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da prez
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« Reply #23 on: February 06, 2016, 06:17:26 AM » |
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Man , it sucks hitting 30. Hang in there Mark. A few life style changes comes with aging.
da prez
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98 T
Member
Posts: 649
'98 Tourer
Brookfield, WI
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« Reply #24 on: February 07, 2016, 11:26:51 AM » |
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Mark
I'm sorry to hear of the health issues - but I'm glad you got it checked out and knowing what's wrong is the start of the cure. I pray that the medication works like it should.
Looking forward to seeing you at InZane.
Loth
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It's not WHAT you ride....it's THAT you ride!
vrcc # 21815
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