|
Momz
|
 |
« on: May 14, 2010, 06:12:10 AM » |
|
As some of you already know, I've had neuro-muscular issues that have stemed from my spinal chord. I've had issues with equilibrium, muscular deterioration, and and other severe problems that were not properly diagnosed.
On this coming Monday I'm haveing more extensive spinal chord/spinal column surgery. This will permanently limit my ability to move my head in order to stabilize my spinal chord.
My recovery time could be from three to four months and muscular atrophy should be limited as there might not allow further nerve signal damage to the affected muscles.
I never imagined that my life could take this route. I had always hoped that my demise would be the result of doing the something like dying while having sex or while on my motorcycle. It seems neither scenario is going to be possible.
I hope that I will not be a big bother to my wife or family.
I'm still planning on comming to IZX if possible.
|
|
|
|
« Last Edit: May 14, 2010, 03:08:54 PM by Momz »
|
Logged
|
 ALWAYS QUESTION AUTHORITY! 97 Valk bobber, 98 Valk Rat Rod, 2K SuperValk, plus several other classic bikes |
|
|
|
Misfit
|
|
« Reply #1 on: May 14, 2010, 06:17:18 AM » |
|
Well that sucks.  I am sorry to hear this. Prayers from Colorado. |
|
|
|
|
Logged
|
If you're lucky enough to ride a Valkyrie, you're lucky enough.  |
|
|
rmrc51
Member
Posts: 1087
Freyja. Queen of the Valkyries
Palmyra, Virginia
|
|
« Reply #2 on: May 14, 2010, 06:17:54 AM » |
|
You hang in there!!!!! We're all pulling for ya!!!!!!
|
|
|
|
|
Logged
|
VRCC # 30041
|
|
|
|
Chrisj CMA
|
|
« Reply #3 on: May 14, 2010, 06:18:55 AM » |
|
Im very sorry to hear this dude!!!!! It was cool meeting you and your wife at Daytona in March. Do what the DR says, but never forget.......They dont know whats going to happen in the future, only God knows that. Were praying for a great surgery and recovery and miraculous healing, and then what will be after that....Hang in there never give up!
|
|
|
|
|
Logged
|
|
|
|
Hoser
Member
Posts: 5844
child of the sixties VRCC 17899
Auburn, Kansas
|
|
« Reply #4 on: May 14, 2010, 06:31:50 AM » |
|
Three words, Trike with big mirrors! NEVER give up! Hoser  Best wishes. |
|
|
|
|
Logged
|
I don't want a pickle, just wanna ride my motor sickle  [img width=300 height=233]http://i617.photobucket.com/albums/ |
|
|
Smokinjoe-VRCCDS#0005
Member
Posts: 13833
American by Birth, Southern by the Grace of God.
Beautiful east Tennessee ( GOD'S Country )
|
|
« Reply #5 on: May 14, 2010, 06:40:04 AM » |
|
If it's none of my business thats cool...Did you get injured ? Something you was born with ( hereditary ) ? Start lookin' for a nice trike  |
|
|
|
|
Logged
|
 I've seen alot of people that thought they were cool , but then again Lord I've seen alot of fools. |
|
|
|
JimL
|
|
« Reply #6 on: May 14, 2010, 06:44:00 AM » |
|
Three words, Trike with big mirrors! NEVER give up! Hoser Best wishes. Hang in there dude! I echo what Hoser just said....... |
|
|
|
|
Logged
|
|
|
|
Whistler
Member
Posts: 1234
Kansas VRCC State Rep., Formerly known as EngEmt
North Newton, Kansas
|
|
« Reply #7 on: May 14, 2010, 08:14:22 AM » |
|
Momz, I am looking forward to meeting you at InZane and will be looking for you! You and your family are on my prayer list,  but as others have said, you never know what the future might bring!  Stay positive attitude can sometimes be half the battle. A trike maybe in your future,  just don't take any riding lessons from a certain young lady that lives south of you.  Take care and keep us posted!  JDW |
|
|
|
|
Logged
|
|
|
|
R J
Member
Posts: 13380
DS-0009 ...... # 173
Des Moines, IA
|
|
« Reply #8 on: May 14, 2010, 08:23:27 AM » |
|
Hang tough. I've also got some muscle degeneration, that the Dr's say is because my shoulder needs replaced and I can't use it to keep the muscle tone. Will be praying for a full recovery with lots of neck mobility. If that no happen, TRIKE........... I've had one for 23 years and she is still racking up miles... It has always made it home under it's own power.  No, that is not me, that is Highbinder... |
|
|
|
« Last Edit: May 14, 2010, 08:35:09 AM by R J »
|
Logged
|
44 Harley ServiCar   |
|
|
|
big turkey
Guest
|
|
« Reply #9 on: May 14, 2010, 08:25:30 AM » |
|
I realize you are facing some scary times.
Praying for you as well.
There was a guy who rode the Dragon two years back and he was paralyzed some time before that.
He had a automatic kick stand and center stand.
His wheel chair would swing around on command and he would dismount and wheel around in it.
This was an amazing site to see.
I saw it personally so no chance it ain't true.
Never say never and a trike still has you in the wind man.
Big Al
|
|
|
|
|
Logged
|
|
|
|
|
Chattanooga Mark
|
 |
« Reply #10 on: May 14, 2010, 09:11:29 AM » |
|
You don't know me as I'm new to this forum. If you haven't already done so, submit to Jesus and ask Him to be your Lord, Saviour and guide. He didn't bring this storm but He is the way through and out of it. After that, take Hoser and Smokin Joes advise about a trike. There are more available than you can imagine.
All the best,
Mark
|
|
|
|
|
Logged
|
...do justice, love kindness, walk humbly... The Bible: Read, Apply, Repeat 2012 Victory Cross Country Tour, in all its pearl white beauty www.bikersforchrist.org |
|
|
Oss
Member
Posts: 12595
The lower Hudson Valley
Ossining NY Chapter Rep VRCCDS0141
|
|
« Reply #11 on: May 14, 2010, 10:32:01 AM » |
|
of course you can always ride behind your wife  then you can say you rode the Valkyrie any day you want Seriously I would love to see the ratvalk as a trike because you will turn it into something unique and fun. Prayers to you from Ossining my friend for a miracle healing |
|
|
|
|
Logged
|
If you don't know where your going any road will take you there
George Harrison
When you come to the fork in the road, take it
Yogi Berra (Don't send it to me C.O.D.)
|
|
|
T-Bird
Member
Posts: 2487
A friend is one who takes me for what I am.
Cleveland, Tennessee
|
|
« Reply #12 on: May 14, 2010, 11:48:49 AM » |
|
"When God closes a door, sometimes he opens a window" Keep your mind open to new possibilities, and embrace the new adventures in life. |
|
|
|
|
Logged
|
|
|
|
|
Rowdy
|
|
« Reply #13 on: May 14, 2010, 01:33:36 PM » |
|
Never say never |
|
|
|
|
Logged
|
Rowdy 99 Gr / Sv I/S 81 Bl CB900 Custom 73 Bl CL350 (sold) 06 Tit GL1800 86 & 84 Magna's V30, V45, V65 (Sold) 77 GL1000 naked wing (Sold) 86 & 84 GL1200 wings (Sold)  Semper Fi "Leathernec |
|
|
|
Momz
|
|
« Reply #14 on: May 14, 2010, 01:43:31 PM » |
|
In response to Smokin Joe and others; my condition is not fully understood, but it may be genetic. I have OPLL (Ossification of the Peripheral Lateral Ligaments) and it is extremely rare in Caucasions. It is common among certain oriental groups. My spinal chord is expanding within the spinal colunm due to calcifiction of the ligaments running along the spinal chord. In short, the ligaments are turning to bone and thus cutting off the signals from my brain to my extremities. So my muscules are not receiving signals from the nerves at the spinal chord. I'd like to think a Trike might be an alternative, but my arms/hands and legs/feet are not responding to what I want them to do. I've recently modified my Rat Rod Valk to allow my ankles to rotate and shift better but I have not been able to ride for about a month now. I have become very weak in a very short period of time. I had started to turn my I/S into a Super Valk and I simply could no longer turn a wrench or hold on to a screwdriver. As a matter of fact Kickstand came over today to help me finish it enough to be able to get it over to my in-laws for storage. Kickstand is a pretty remarkable guy; as he lost a leg in a Valk versus car altercation. I thank God he came over today, as he has had his own share of medical issues far beyond the loss of his leg. How do you thank friends that take time to work on a bike that I may never even be able to throw a leg over again.  |
|
|
|
« Last Edit: May 14, 2010, 05:22:00 PM by Momz »
|
Logged
|
ALWAYS QUESTION AUTHORITY! 97 Valk bobber, 98 Valk Rat Rod, 2K SuperValk, plus several other classic bikes |
|
|
|
solo1
|
|
« Reply #15 on: May 14, 2010, 03:03:18 PM » |
|
Momz, I'm at a loss for words except to say that you're in my prayers.
I also looked up your disorder because I've never heard of it. Along the way NORD popped up.
Stands for National Organization for Rare Disorders. It has a off shoot group of people that interact and support which is called INSPIRE. One person who also has your disorder was asking for help in locating a physician that was familiar with OPPL.
Just a thought.
Wayne, Solo1
|
|
|
|
|
Logged
|
|
|
|
MP
Member
Posts: 5532
1997 Std Valkyrie and 2001 red/blk I/S w/sidecar
North Dakota
|
|
« Reply #16 on: May 14, 2010, 04:22:41 PM » |
|
Best wishes Momz.. All my prayers for you.
MP
|
|
|
|
|
Logged
|
 "Ridin' with Cycho" |
|
|
JerryB
Member
Posts: 311
Takin' it easy!
Michigan
|
|
« Reply #17 on: May 14, 2010, 05:31:48 PM » |
|
Hope things work out for you Momz.......prayers and good vibes going your way from my family to you and yours........JerryB.
|
|
|
|
|
Logged
|
Retired and taking it easy!
|
|
|
|
fast black
|
|
« Reply #18 on: May 14, 2010, 05:55:12 PM » |
|
Momz I am sorry to hear about your problem. You helped me with a question about my seat latch. Hang in there, you never know what the future holds and I pray that everything works out for you.
regards,
fast black
|
|
|
|
|
Logged
|
|
|
|
|
therapist
|
|
« Reply #19 on: May 14, 2010, 06:03:51 PM » |
|
Keep fighting George...I have found when life throws something at you, getting angry at it is healthier than becoming sad, helpless and hopeless (depression). Please make sure to look for me at InZane...we have some stuff in common right now.
|
|
|
|
|
Logged
|
|
|
|
|
thumper
|
|
« Reply #20 on: May 14, 2010, 06:17:17 PM » |
|
Momz,
Believe it or not...there is life after motorcycling....you just have to go find it. I've been battling cancer for six years so I know something about looking down a dark road. Life is good. Make the most of it.
Remember....an oak tree is nothing but an acorn that stood it's ground!
Good luck!
|
|
|
|
|
Logged
|
An oak tree is nothing but an acorn that stood it's ground!
|
|
|
|
Dogg
|
|
« Reply #21 on: May 14, 2010, 07:14:37 PM » |
|
How do you thank friends that take time to work on a bike that I may never even be able to throw a leg over again. with a hug and a thank you. simple as that... prayers from eastern shore of Md.. |
|
|
|
|
Logged
|
|
|
|
|
Normandog
|
|
« Reply #22 on: May 14, 2010, 07:26:10 PM » |
|
Very sorry to hear this Momz. Like Misfit said, " that sucks. " Best wishes man.
|
|
|
|
|
Logged
|
|
|
|
|
kickstand
|
|
« Reply #23 on: May 15, 2010, 05:18:03 AM » |
|
Yo George I was there to learn You be the teacher Hang in there my friend I'm only 10 min away call me any time
|
|
|
|
|
Logged
|
ALLEN PARK ,MI
|
|
|
|
Crazyhorse
|
|
« Reply #24 on: May 15, 2010, 05:18:26 AM » |
|
Sorry to hear we will be praying for you and your family. See you at Inzane.
Mac
|
|
|
|
|
Logged
|
|
|
|
|
RoadKill
|
|
« Reply #25 on: May 15, 2010, 08:15:40 AM » |
|
Where there is a will..there is a way! Dont loose your will and with Gods will on your side the future will be better than it seems right now. Cant loose hope unless you see and predict the future better than the rest of us. |
|
|
|
|
Logged
|
|
|
|
|
